This is Huy, an amazing, brave, funny, bright and wonderful little boy. Huy lives with EB in Vietnam, he is 12 years old. There is no cure for EB only wound care support from loving individuals that care. The hospitals do not recognize EB here and there is little wound care support except for the amazing Tram, Huong, and their wonderful network. HOW will be adding Huy to our “Starfish” program. He will need wound care supplies for life. Some are available in Vietnam but any are only available in Australia, the USA and outside of Vietnam. HOW will be looking for donations for EB kits (please emails hillary@helpinghow.com for a complete list of supplies not available in Vietnam) and we will also require support through manufacturers willing to donate wound care supplies, trained nurses, educational assistance as well as funding (as usual). Huy is an amazing boy and did not complain during our visit once, in fact he cried for joy when he was told we would do everything in our power to help bring him a bit of relief and also whatever we can do to help him. Huy is one of two children I met today living with EB. I wanted to introduce them separately because they are both so unique as all of our own children are. What a charmer and a lovely boy. HOW has a lot of work to do to deliver the wound care needs for this little man. His only request when asked what he would like if he could have anything was “Doriman (sp) Superman DVD’s and books to help him learn English and for his …
Video Rating: 4 / 5
